Not Today DMD!

🏃‍♂️ Join Us in the Fight!

Join us in our race to raise awareness and hopefully someday bring an END to Duchenne!

📖 Our Story:

In the summer of 2021, Mason and Dawson were both diagnosed with Duchenne Muscular Dystrophy (DMD) — a rare, progressive genetic disorder characterized by severe muscle degeneration.

• Diagnosis: In the summer of 2021, both boys were diagnosed with DMD.
• Nature of DMD: The body lacks a crucial protein called dystrophin, essential for muscle repair and function.
• Progression: The disease typically begins around age 7, with declining gross motor skills.
• Impact: By ages 10 to 12, most individuals lose the ability to walk and require a wheelchair.

🔬 Hope on the Horizon:

There is hope on the horizon for Duchenne Muscular Dystrophy patients. Recent advancements in gene therapy offer promising potential.

• Innovations: Optimism grows as advancements might allow Mason and Dawson to maintain mobility into adulthood.
• Treatment: Both boys are currently following a steroid treatment regimen as part of their care plan.
• Clinical Trials: Mason has participated in a gene therapy clinical trial, a significant step in the fight against Duchenne.
• Dawson's Aspirations: Dawson is on a break from infusions, hoping to join a gene therapy trial later this year.

🌟 Looking Forward:

The future is full of possibilities, and we remain hopeful that Duchenne Muscular Dystrophy will one day be eradicated in our boys’ lifetime.

📅 Event Details:

• Date: September 13, 2025
• Location: 118 Weldon St, Roberts, IL
• Register Here: Not Today DMD!