🏃♂️ Event Overview
We are thrilled to announce the 6th Annual Guzi’s Hunt for the Cure Run/Walk for Huntington’s Disease, taking place on Sunday, May 17, 2026, at Oak Creek’s Lake Vista Park. Thanks to the incredible support from our sponsors, participants, and generous donors, we have raised over $380,000 in the past five years for the Huntington’s Disease Society of America (HDSA) – Wisconsin Chapter and Guzi’s Hunt For The Cure Foundation, Inc. This year, we aim to continue this momentum and achieve our fundraising goal of $75,000.
💙 About Chris Guzikowski and Huntington’s Disease
- Background: In 2020, Chris Guzikowski, a lifelong resident of Oak Creek, 6th District Alderman, member of the Oak Creek Lions, and 2018 Oak Creek Citizen of the Year, received a life-altering diagnosis of Huntington’s Disease (HD).
- Impact: This rare genetic neurological disorder affects approximately 41,000 individuals in the U.S. and has no cure.
- Symptoms: HD manifests as ALS, Parkinson’s, and Alzheimer’s, simultaneously, leading to cognitive decline, involuntary movements, irritability, balance issues, and ultimately, swallowing difficulties and death.
- Hereditary Nature: The hereditary nature of HD means that Chris’s three daughters also face a 50% chance of inheriting this devastating condition.
💔 A Personal Journey with Huntington’s Disease
- Heartbreaking News: In 2023, as Chris’s daughter Carley Renner and her husband Nate were preparing to start their family, they received the heartbreaking news that Carley also carries the Huntington’s gene.
- Future Risks: This not only means Carley faces the same fate as her father but also that any biological children they have would face a 50% chance of inheriting the gene.
- Positive Development: Fortunately, they received a grant for high-cost fertility assistance, allowing them to ensure their biological children would be HD-free.
- Family Growth: They have since welcomed two healthy HD-free children!
🌟 Guzi’s Hunt for the Cure Foundation, Inc.
- Mission: The foundation is dedicated to raising awareness about Huntington’s Disease and the benefits of pre-implantation genetic testing with IVF.
- Recent Success: We are excited to announce the Khoury family welcomed a healthy baby boy in 2025.
- Grants: The foundation recently awarded its third grant to a deserving couple.
- Financial Support: A single PGT-IVF journey can carry costs of $35,000+. The proceeds from this year’s fundraising efforts will support both Guzi’s Hunt for the Cure Foundation, Inc. and HDSA- WI Chapter.
🎉 Join Us
We sincerely appreciate your consideration in supporting our mission to reach our 2026 fundraising goal of $75,000. We hope to see you at Guzi’s Hunt for the Cure 5K Run/Walk for Huntington’s Disease on Sunday, May 17th!