5th Annual KCNA2 Epilepsy Fun Run & Roll

Event Overview

Join us for the 5th annual KCNA2 Epilepsy Fun Run & Roll, a community event dedicated to raising awareness, supporting families, and advancing research for KCNA2-related disorders.

Our 2026 Goal

• Target Amount: $30,000
• Support Research: Every registration and donation directly supports scientific research on KCNA2-related disorders.
• Generosity Matters: Your contributions help bridge the gap between groundbreaking discoveries and improved quality of life for those affected by this rare disease.
• Joint Commitment: Together, we are committed to identifying new treatment pathways, enhancing quality of life, and driving towards a cure.

Participation Options

Join us in-person in Tigard, Oregon, or participate virtually anywhere around the world!

Event Day Schedule

• 8:15 AM: Packet pick-up and last minute registration
• 9:00 AM: 5K and 1 mile run/walks begin
• 9:00-10:30 AM: Finish line refreshments, raffle, and gathering
• 10:30 AM: Course closes and event ends

Important Details

• Location: Packet pick-up, start, and finish are all located at Shelter 4 of Cook Park, Tigard.
• All Abilities Welcome: Run, walk, or roll!
• Course Reminder: The entire course is within Cook Park and all paths are shared with the general public. Please be courteous of others and stay to your right.
• No Bag Check: Please plan accordingly.
• Parking: Free parking is available throughout Cook Park, including two ADA spots nearby.
• Restrooms: Public restrooms are available near the start/finish.
• Weather: Portland weather can be unpredictable. This event will happen rain or shine!
• Dog Policy: Dogs are welcome to join us on the run/walk, but must be on a leash.

Registration Cost

Regular registration - July 13 through August 31:
$36 per adult
$20 per child
Late registration - Sept 1-12:
$40 per adult
$25 per child

What's Included?

Bib number, race shirt*, raffle entry, free coffee, and finish line refreshments. *Race shirts are only available for the first 100 registered participants courtesy of Do Good Factory!

Volunteers Needed!

If you would like to volunteer for this event, please click HERE to fill out a form.

VIRTUAL OPTION

Gather your friends and family and do your Fun Run & Roll wherever you are! Submit your results here on RunSignUp or send us a snapshot of your GPS run and we will include them in the final results. Photos are also welcome and encouraged!

Registration Deadline

USA: Register by September 1 to receive your packet in the mail before the event date. Registration will be accepted after this date but we cannot guarantee that you will receive your items before the event date.

International Participants

This option is no longer available. Please consider donating instead of registering. We also encourage you to host your own Fun Run & Roll event in your area! We are happy to support and provide guidance. Contact kcna2funrun@gmail.com

Learn More

What is KCNA2 Epilepsy?

KCNA2 epilepsy is a rare neurological disorder caused by variations in the KCNA2 gene, which controls the Kv1.2 potassium channel in the brain. These channels act like gates that help neurons send and receive electrical signals. When the KCNA2 gate isn’t working properly, the brain’s electrical system becomes unstable, leading to seizures, movement disorders, intellectual and developmental disabilities, and behavioral conditions.
Learn more at: kcna2epilepsy.org

What is the KCNA2 Epilepsy Organization?

KCNA2 Epilepsy was founded in 2021 as a 501c3 nonprofit organization with the mission to promote education and awareness so patient-focused research and effective treatments become available. Our vision is to connect families affected by KCNA2 Epilepsy with treatment options, professionals, and provide support to improve outcomes. We have a global footprint being connected and working with families, scientists, clinicians, and professionals around the world.