When
Sunday, September 20th, 2026
Where
550 Weidman Rd, Saint Louis MO
Distances
5K · 1 Mile
About this race
Run for Awareness. Run for Research. Run for Hope.
Event Overview
- Date: September 20, 2026
- Location: 550 Weidman Rd, Saint Louis, MO
- Pick Your Event: Timed 5K Run or 1-Mile Walk/Fun Run
- Virtual Option: Join from Home!
Registration Details
- Event Participant T-shirt: Included with registration (must submit by 9/6/26)
- Shipping: Virtual participants' shirts mailed after in-person event ($5 charge)
- Website: Desmoid Defenders 5K Run/Walk
- Inspired by: Maeve Long's journey as a remarkable young athlete
Why We Run
- Maeve Long: A healthy, active teenager who loved sports
- Diagnosis: In November 2025, diagnosed with Desmoid Fibromatosis
- Treatment: Underwent chemotherapy, frequent testing, and ongoing treatment
- Inspiration: Maeve's courage inspires everyone around her
About Desmoid Tumors
- Definition: Rare, invasive tumors that affect surrounding tissues
- Impact: Do not spread but can cause significant damage
- Research Importance: Funding and awareness are essential for treatment improvements
- Goal: Move closer to finding effective therapies for affected patients
Our Mission
- Raise Awareness: Of desmoid tumors and their impact on families
- Support Research: Efforts aimed at improving treatment and outcomes
- Community Togetherness: Support those facing this rare disease
- Honor Resilience: Celebrate the strength of patients like Maeve
Call to Action
- Join Us: Become a Desmoid Defender this September!
- Goal: Reach over 200 participants and raise over $10,000 for the foundation
- Stay Connected: Follow the Desmoid Tumor Research Foundation on social media
- Support: Thank you for raising #DesmoidAwareness!
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