Burlington Surf Club, Burlington VT
Saturday, October 11th, 2025
Welcome to the second annual PANS/PANDAS Awareness event in Vermont! Join us for a 5K fun run and walk along in Burlington on October 11, 2025 to raise awareness for PANS/PANDAS here in Vermont—an often-overlooked autoimmune disorder affecting children and young adults. We’re calling on our citizens of Vermont to join us in raising awareness and moving towards change and healing.
This is a family-friendly run/walk in Burlington. Everyone is welcome:
We are again partnering with The Alex Manfull Fund (TAMF), a New Hampshire-based 501(c)(3) non-profit organization, that supports awareness, education, and research to further understand the incidence, etiology, and best treatment of post-infectious neuroimmune disorders (aka PANDAS, PANS, and Autoimmune Encephalitis) with an emphasis on their manifestation in Adolescents and Young Adults.
PANS (Pediatric Acute-onset Neuropsychiatric Syndrome) and PANDAS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal infections) occur when a child’s immune response to an infection causes inflammation in the brain. The inflammation can cause the sudden onset of behavioral, neurological, and personality changes.
Welcome to the PANDAS/PANS 5K! We are a family of 5 living in Burlington looking to transform the hardship of our own PANDAS journey into a beacon of hope and progress for others.
In September 2022, at age 8, our son experienced a sudden, acute onset of extreme neuropsychiatric symptoms. As his parents, we sought help from doctors, psychiatrists, and local resources but to no avail: his condition continued to spiral. Thanks to one of our son’s former teachers, who witnessed our struggle and had read about PANDAS on Facebook, we got a first glimpse of what could be happening. In June 2023, a clinic at Dartmouth Hospital diagnosed our son with PANDAS. Since then, treatment and recovery have been long and arduous, however finally—now almost two years later—his condition has improved significantly. With a bit of blue sky returning for our family, we’ve emerged with a clear mission: to help others living with this devastating condition.
Join us on October 11, 2025, at the Burlington Surf Club, Burlington, VT. For more information, visit the event page: Vermont PANDAS & PANS Awareness 5K.
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