Burlington Surf Club, Burlington VT
Saturday, October 11th, 2025
Join us for a 5K fun run and walk along in Burlington on October 11, 2025 to raise awareness for PANS/PANDAS here in Vermont—an often-overlooked autoimmune disorder affecting children and young adults. We’re calling on our citizens of Vermont to join us in raising awareness and moving towards change and healing.
We are again partnering with The Alex Manfull Fund (TAMF), a New Hampshire-based 501(c)(3) non-profit organization, that supports awareness, education, and research to further understand the incidence, etiology, and best treatment of post-infectious neuroimmune disorders (aka PANDAS, PANS, and Autoimmune Encephalitis) with an emphasis on their manifestation in Adolescents and Young Adults. TAMF has established a fellowship fund at Dartmouth Hospital’s Neuroimmune Psychiatric Disorder (NIPD) clinic. Net proceeds from our event will be given to NIPD in support of their clinic.
PANS (Pediatric Acute-onset Neuropsychiatric Syndrome) and PANDAS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal infections) occur when a child’s immune response to an infection causes inflammation in the brain. The inflammation can cause the sudden onset of behavioral, neurological, and personality changes. The effects of PANS/PANDAS on children and their families are devastating—yet these conditions are still relatively unknown in Vermont, making diagnosis and treatment extremely difficult. Learn more about this condition and its symptoms.
Welcome to the PANDAS/PANS 5K! We are a family of 5 living in Burlington looking to transform the hardship of our own PANDAS journey into a beacon of hope and progress for others.
In September 2022, at age 8, our son experienced a sudden, acute onset of extreme neuropsychiatric symptoms. As his parents, we sought help from doctors, psychiatrists, and local resources but to no avail: his condition continued to spiral. Thanks to one of our son’s former teachers, who witnessed our struggle and had read about PANDAS on Facebook, we got a first glimpse of what could be happening. In June 2023, a clinic at Dartmouth Hospital diagnosed our son with PANDAS. Since then, treatment and recovery have been long and arduous: however, finally—now almost two years later—his condition has improved significantly. With a bit of blue sky returning for our family, we’ve emerged with a clear mission: to help others living with this devastating condition.
Date: October 11, 2025
Location: Burlington Surf Club, Burlington, VT
For more information, visit Vermont PANDAS & PANS Awareness 5K Run/Walk.
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