Walk for Strength 5K (Run / Ruck / Walk) - NC Logo

Walk for Strength 5K (Run / Ruck / Walk) - NC

Save
Feature
Claim

Dorton Park - 5790 Poplar Tent Rd, Concord NC

Saturday, June 21st, 2025

🏃‍♂️ Event Overview

  • Date: 2025-06-21
  • Location: Dorton Park - 5790 Poplar Tent Rd, Concord, NC
  • Event Type: Run / Ruck / Walk
  • More Information: Event Page

✨ Purpose of the Event

  • Signature Event: The Walk for Strength is the signature event of the Association for Creatine Deficiencies.
  • Community Support: Brings together families, advocates, and communities to support individuals affected by Cerebral Creatine Deficiency Syndromes (CCDS).
  • Awareness: Create powerful space for rare disease families to raise awareness, build connections, and drive change.
  • Impact: Your support makes a lasting impact on rare disease families and brings hope, awareness, and strength.

💰 Fundraising Goals

  • PatientStrong Fund: Funds raised will go directly to the ACD PatientStrong Fund, powering all ACD initiatives.
  • Lifesaving Research: Every donation helps drive research, caregiver education, and advocacy for early intervention through newborn screening.
  • Change Lives: Supporting this event helps fund vital research and empowers families with essential resources.
  • Early Diagnoses: Aim to push for earlier diagnoses that can significantly improve lives.

🧠 About CCDS

  • Definition: Cerebral Creatine Deficiency Syndromes (CCDS) are rare, in-born errors of metabolism resulting in a lack of creatine in the brain.
  • Types: Include AGAT Deficiency, GAMT Deficiency, and Creatine Transporter Deficiency (CTD).
  • Function: Creatine helps supply energy to all cells in the body, essential for brain and muscle function.
  • Diagnosis: Often delayed due to non-specific symptoms and lack of clear dysmorphic features, patients are misdiagnosed.

🔍 Prevalence and Case Details

  • Estimations: Approximately 1% of individuals with intellectual disabilities of unknown origin may have CCDS.
  • CTD Statistics: Represents the second largest cause of x-linked mental disability behind Fragile X syndrome.
  • Documented Cases: Over 100 documented cases of GAMT Deficiency: AGAT is the rarest type with only a few dozen cases.
  • Community Impact: Driven by passion, the CCDS community works to educate, advocate, and fund research.

🌟 Community Story

  • Local Family: The Grahams, who live in the Charlotte area, host the Walk for Strength 5K.
  • Inspiration: Their son Levi, who has CTD, faces daily challenges yet inspires with his joy and resilience.
  • Support: The community is united in advocating for treatments and cures, fueled by stories like Levi's.
  • Path Forward: Support is essential for accelerating research and believing in a brighter future.

Course Map

Suggested Races

Asheville Independence Day 5K logo

Asheville Independence Day 5K

Asheville, NC

Friday, July 4th, 2025

Featured
5K
View details for race Asheville Independence Day 5K
Muddy Dash | Charlotte logo

Muddy Dash | Charlotte

Concord, NC

Saturday, October 25th, 2025

5K
View details for race Muddy Dash | Charlotte
Tour de Saints 2025 logo

Tour de Saints 2025

Concord, NC

Saturday, August 23rd, 2025

Half
View details for race Tour de Saints 2025
Run The South Half Marathon, 10K & 5K logo

Run The South Half Marathon, 10K & 5K

Charlotte, NC

Saturday, June 21st, 2025

5K
10K
Half
Fast
View details for race Run The South Half Marathon, 10K & 5K
Community Matters 5K logo

Community Matters 5K

Charlotte, NC

Saturday, August 23rd, 2025

5K
View details for race Community Matters 5K
Huntersville Sprint Triathlon logo

Huntersville Sprint Triathlon

Huntersville, NC

Sunday, August 24th, 2025

View details for race Huntersville Sprint Triathlon
Lake Norman Fondo 2025 logo

Lake Norman Fondo 2025

Davidson, NC

Sunday, August 17th, 2025

View details for race Lake Norman Fondo 2025
Mooresville Fondo logo

Mooresville Fondo

Mooresville, NC

Sunday, September 7th, 2025

View details for race Mooresville Fondo
South End Shuffle 5k & 1 Mile 2025 logo

South End Shuffle 5k & 1 Mile 2025

Charlotte, NC

Saturday, September 13th, 2025

View details for race South End Shuffle 5k & 1 Mile 2025
QC Gold Mile logo

QC Gold Mile

Huntersville, NC

Saturday, September 6th, 2025

Fast
View details for race QC Gold Mile
Tour de Turns logo

Tour de Turns

Charlotte, NC

Saturday, August 23rd, 2025

View details for race Tour de Turns
Runway 5K logo

Runway 5K

Charlotte, NC

Saturday, October 18th, 2025

Fast
View details for race Runway 5K
Claudia's 5K logo

Claudia's 5K

Huntersville, NC

Saturday, October 18th, 2025

View details for race Claudia's 5K
MRO Bump n' Run 5K logo

MRO Bump n' Run 5K

Concord, NC

Wednesday, September 17th, 2025

5K
View details for race MRO Bump n' Run 5K
Opal’s Walk for Freedom: A Nationwide Camp Initiative logo

Opal’s Walk for Freedom: A Nationwide Camp Init...

Charlotte, NC

Thursday, June 19th, 2025

View details for race Opal’s Walk for Freedom: A Nationwide Camp Initiative
Charlotte Firecracker 5K logo

Charlotte Firecracker 5K

Charlotte, NC

Thursday, July 3rd, 2025

View details for race Charlotte Firecracker 5K
Around the Crown 10K logo

Around the Crown 10K

Charlotte, NC

Sunday, August 31st, 2025

10K
View details for race Around the Crown 10K
Cannon Ballers Shooting Star 5K logo

Cannon Ballers Shooting Star 5K

Kannapolis, NC

Saturday, August 16th, 2025

5K
View details for race Cannon Ballers Shooting Star 5K
Race for Peace logo

Race for Peace

Kannapolis, NC

Saturday, October 4th, 2025

5K
View details for race Race for Peace
Old Armor 5K logo

Old Armor 5K

Kannapolis, NC

Saturday, November 8th, 2025

View details for race Old Armor 5K

Find The Run Newsletter

Ad

Race day coming up? Grab your essentials on Amazon now.

Shokz

Shop Shokz →

Fuel

Shop Gu →

Running Belts

Shop Belts →

Privacy PolicyTerms of ServiceContactAdd Your Race

© 2025 Find The Run. All rights reserved.