Run Rare 5k

Race Details

• Check-in starts: 9:30 AM
• Race starts: 10:00 AM
• Date: March 13, 2027
• Location: 1 Paradise Park Rd, Jacksonville, AR

Run Rare Overview

RUN RARE: The Rarety 5K is more than just a race... It’s a movement. A celebration. A call to action. It’s a heartfelt and high-energy event powered by Rarety, a nonprofit organization founded by Taylor, a Class of 2026 student who has been bravely battling a rare disease for years. She leaves the National Institute of Health on Friday, 03/13/26, where they studied her body from head to toe for a week, hopefully to find a cure.

Inspiration Behind the Event

This 5K honors the often unseen, unheard, and misunderstood voices of rare warriors around the world...especially young people like Taylor, whose personal journey with a rare condition became the heartbeat of this event. Taylor’s story of strength, perseverance, and faith is a testament to what it means to keep showing up, to keep fighting, and never to let a diagnosis define your destiny.

Community Invitation

RUN RARE invites people of all ages, abilities, and backgrounds to walk, run, or roll in solidarity with the rare disease community. Whether you’re lacing up in memory of someone you love, standing beside a warrior in your life, or showing support from across the country in our virtual option...your steps help amplify a message that is too often overlooked:

• Being different: is powerful!
• Every rare story: deserves to be seen, heard, and celebrated!

Our Mission

The purpose of RUN RARE is to:

• Raise awareness: for rare diseases, many of which are unknown, underfunded, or misunderstood.
• Shine a light: on the stories of rare warriors, reminding them and the world that they are not invisible.
• Provide a space: of unity, inspiration, and strength for families, caregivers, and advocates.
• Support ongoing programs: of Rarety, including education, youth empowerment, outreach, and resources for rare disease families.

Why It Matters

There are over 7,000 rare diseases affecting more than 300 million people worldwide, many of them children. Yet because of their rarity, many patients face delayed diagnoses, limited treatment options, and a lack of public awareness or understanding.

RUN RARE is about changing that!! When you join this 5K, you are not just registering for a race... you’re joining a movement that fights for equity, inclusion, awareness, and support for a deeply underrepresented community. You’re helping us say loudly and clearly: It’s OK to be different. And being rare is something to be proud of!!

Registration Link

For more information and to register, please visit Run Rare 5K.