South Lawn at UVA, Charlottesville VA
Sunday, April 19th, 2026
Event Overview
- Event Name: NORD at UVA 5k
- Date: April 19, 2026
- Location: South Lawn at UVA, Charlottesville, VA
- Event Link: Register Here
About NORD at UVA
- Organization: NORD at UVA is a student chapter of the National Organization for Rare Disorders.
- Purpose: This is the first fundraising 5k aimed at supporting rare disease advocacy.
- Formation: Founded two years ago, focused on education and advocacy within the rare disease space.
- Impact: All proceeds will go toward NORD's support of rare disease patients.
About NORD
- Mission: NORD (National Organization for Rare Disorders) is dedicated to individuals with rare diseases.
- Advocacy: A 501(c)(3) organization with over 300 patient organization members.
- Commitment: Focused on the identification, treatment, and cure of rare disorders.
- Statistics: Over 25 million Americans diagnosed with rare diseases, with less than 10% having FDA-approved treatments.
Goals
- Fundraising: To help fund research for rare diseases.
- Support: Enhance the support for individuals and families affected by rare disorders.
- Awareness: Raise awareness about the challenges faced by patients with rare diseases.
- Education: Promote education and advocacy efforts through community engagement.
Additional Information
- Website: Learn more about NORD at rarediseases.org.
- Community Event: Join us to make a difference in the rare disease community.
- Participation: Open to all community members and supporters of rare disease advocacy.
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